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Jylian's Place |
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You can call me Jylie Bean! Welcome to my website! It's for my friends, family, and other kids and parents who want to learn more about me. I was born with a rare genetic condition known as Loeys Dietz Syndrome. I am very happy, bright and full of life, and my family is so proud to share my story. At Jylian's Place you'll find my information, my pics, and links to my doctors and hospitals. |
Summer 2007- Jylian is very busy this summer! She LOVED playing Miracle League baseball in the spring and will be playing again in September. She is taking a dance class, and she does so well! We are so proud of her, and she continues to amaze us daily! We continue to watch and monitor her heart, and we appreciate your continuous prayers and support.
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July 2007- Jylian and Mikey will welcome baby sister Ivy Claire at the end of this month! We're so excited to meet you Ivy! |
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